St Christophers
Malcolm Payne

Social care and social work are important in end-of-life care.

Malcolm Payne's blog focuses on developments in social care and social work that affect palliative and end-of-life care. It is part of the information work of St Christopher's Hospice, London.

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Archive for the ‘Uncategorized’ Category

Does abuse inevitably come with vulnerability? If so, what do care services do about it?

Monday, September 19th, 2011


A local newspaper reports on compensation for people with learning disabilities cared for by a Cornwall healthcare trust: £6.5m for the institutional abuse they suffered, added to £1.47m they were awarded a while ago because the Trust (strange word for it in the circumstances) misspent their personal money on its own activities. Things are better in those services after five years, say the Trust, and the deal means that it won’t go to a big trial which would cause further delays. However, you still have to ask why it has taken so long to come up with compensation and why it was not obvious immediately that the people concerned were being mistreated and cheated and therefore that such costs accumulated.

What is the moral compass of people who are working in care services? Why does it so often seem to require scandals, inquiries and compensation to lead to improvements and change? A generation or two ago, there were many scandals about ill-treatment in long-stay hospitals, leading to a development in community care. A while later, there were scandals about people not being properly cared for in the community. It seems that wherever vulnerable people are being cared for, abuse arises.

Does vulnerability in people always lead to their exploitation? Perhaps not inevitably, because my experience in social work is that many people care amazingly well and selflessly for their family and friends. But it seems that some abuse will always arise, because there is a long-term history of abuse by parents and carers. Does having care services always mean a proportion of people will be abused? If it seems so, what can we say about human beings? Can we assume that caring is integral to humanity? The example of the development of hospices and more recently trying to improve end-of-life care perhaps suggests that it is. But it seems to be a constant struggle to preserve caring for people when they are vulnerable, so is exploitation of vulnerability also a commonplace characteristic of humanity? More so than caring?

I suppose many religions have always said that achieving good is always a struggle for human beings individually and collectively. Why is that? And if it is true, how should we structure caring services to deal with that?

The newspaper story: http://www.thisiscornwall.co.uk/NHS-abuse-victims-win-pound-6-5million-pay/story-13342698-detail/story.html

NAO Report: why the market is not a good thing for care

Monday, September 19th, 2011


The recent Report by the National Audit Office on personalisation and social care provides lots of useful information, and also a thoughtful critical review of the issues in the developing social care sector. Its main focus is whether local and national oversight is sufficient to ensure that needs are met and personal budgets are not misused. It comes to the conclusion that the government doesn’t have much in the way of levers to manage situations that go wrong, and there are insufficient resources to move in and take over if a major supplier goes bust. It was also hard to find care providers who could deal with very complex needs and getting advice and support for care users in setting up and managing their care was also difficult.

This bit includes a brief study of the collapse of the main national private provider of care homes, Southern Cross, recently. It confirms what we already knew, that this was mainly because its private equity owners sold its property and leased it back a few years ago.  This is a typical manoeuvre by private equity companies, whose job is to squeeze the assets of the companies they own to get as much money out of them as possible. It has led to the downfall of a lot of retailers because they have too much debt to cope when market conditions get tough. The report makes the point that care homes and the care sector generally are not good candidates for this, because they have high fixed costs anyway, and if there are fewer people using them (because local authorities and other funders won’t pay or they come up with other options, which they will because this is policy), there will be more competition with other providers, fees will go down, and losses start to accumulate. Will we see less private equity involvement in the care sector? Don’t bet on it if there is money to be made: this should be restricted in the cause of quality care.

Another feature of the social care system that makes a market system a poor way of providing is a comment made on p 28:

From a consumer perspective, the care homes market has some characteristics of an inefficient market:
Entry into a care home is often unplanned and can be made in response to a specific event (such as a hospital admission or the death of a spouse).
By definition, switching rates (choosing to switch care home) are very low, and consumer research commissioned by the Office of Fair Trading suggests that it is considered to be a last resort by most residents (it can often adversely affect residents’ health).
As is the case with most care services, buying a care home place is inevitably an ‘experience good’, meaning that the consumer cannot really tell their satisfaction until it has been experienced.

There are also difficulties in getting new entrants to the care market, for three reasons:

Providers struggling to recruit staff to cover isolated and sparsely-populated rural areas.

High rent costs in some urban areas.

The challenging nature of care work, often unsocial hours, and relatively low levels of pay. (p 31)

To deal with this they recommend:

Subsidising adviser posts in voluntary sector advice and support providers.

Helping new small providers and social enterprises to enter the market by making local authority tendering and contracting processes more flexible and less burdensome for small providers.

Providing advice and in some cases limited financial support to help new small-scale care businesses enter the market.

Of course, they could come to experienced high-quality care providers like hospices, and get them to enter the social care market; this is happening in some areas.

Interestingly, an ADASS report on how things were developing suggests that most of the development is not in direct payments (the government’s and enthusiasts’ preference for the future of user control) but managed budgets (you get allocated a budget, but the local authority or some friend of the local authority – their tame voluntary organisation – manages it for you. This may be realistic, but it may signal the end of the shift to giving people government cash for care. Or it may mean there is going to be a hiatus while people get the confidence to move on again.

One of the things to ask is why the government is so keen on giving away its money in cash – generally treasuries don’t like allowing real people to get their hands on government cash; it means things can get out of control. The answer is two-fold: the politicians like it because people like the flexibility and control, so there is positive feedback in social care, an area that often gives problems rather than positives to government, local or national. The other answer is that the present political elite would like to have a functioning system of vouchers or something like to show that it can work. In most other areas where it is politically important to right-wingers to displace publicly funded services (health and education) vouchers have been shown not to work. So here the treasury (local and national) view may accord with the political view: by developing managed budgets, they can hang on to control while offering the semblance of giving user control. I’m a bit doubtful whether, in the long-term and covering every service user across the country, managed budgets will give real user control. The advisers and managers of the budgets will not have the incentives in the local government system (where not giving out money for any purposes if at all possible is totally ingrained) to be creative in getting imaginative ideas from service users and implementing them. They’ll fall back on standardised responses. So much more convenient and manageable.

The Report doesn’t get stuck on whether user choice is desirable and is actually enhanced; in general it follows government policy in thinking that it is. However, there are different views in different sectors of the population who might use personalised social care. Older people are less enamoured, although in general a majority of all sorts of service users thought that their mental well-being was improved and they achieved support that met their needs.

Tables NAO soicla care rpt 2011The Report at: http://www.nao.org.uk/publications/1012/oversight_of_care_market.aspx?dm_i=4O5,JGIK,UF1K0,1L8WB,1

National Audit Office (2011) Oversight of user choice and provider competition in care markets: Report by the Comptroller and Auditor General (HC 1458). London: TSO.

Social work thought leaders, only in America?

Wednesday, September 7th, 2011


And just so you don’t think I only go on about what the government does, I’ll say something about social work next. I looked at the NCPC and Help the Hospices websites to find something to write about there, but they all seem to have been on holiday. I hope that doesn’t stimulate a response from either or both telling me about loads of things they’ve done recently; it’s not obvious from the websites, guys.

You’ll have gathered that I have not been on holiday. It’s the conference season, and I have five lectures and two papers to give this month, which is why posts from me have been hard to find recently. In preparation, I’ve been looking at a book published (in America) for the ‘Global partnership for transformative social work practice, education, and inquiry’. Sounds great until you realise that it has two papers not from north America, both from senior white academics, Nigel Parton from the UK and Mel Gray from Australia, previously South Africa. Both significant ‘thought leaders’ but hardly signifying a ‘global partnership’ (Sorry about that, it’s a new bit of jargon I’ve found in an American book review).

You have to wonder whether the Americans have found Africa, Asia and Latin America yet, in spite of the claim of their educational validating body (CSWE) that social work courses in the US have a ‘global perspective’ and the proliferation of American texts on some variety of international social work.

I won’t dignify the book by a citation. Perhaps they need to recognise that there are some thought leaders elsewhere in the world.

Palliative care for homeless people

Tuesday, February 15th, 2011


I said a couple of days ago that we need to think about palliative care for homeless people, and now see in the recent NCPC magazine Inside Palliative Care a feature about a St Mungos/ Marie Curie collaboration to do just that. Power to their elbow.

Trinity Hospice 120th anniversary

Monday, February 7th, 2011


Congratulations to Trinity Hospice on its 120th birthday, and getting Huw Edwards and Jack Dee to come and celebrate it for them. Unfortunately, their local newspaper can’t spell Clapham, but there you go.

On the web at:

http://www.wandsworthguardian.co.uk/news/8832177.Celebrities_celebrate_charity_s_120th_anniversary/

US film on talking about dying and do not resuscitate

Thursday, February 3rd, 2011


A well-made American television film about the medicalisation of death and dying
http://video.pbs.org/video/1639625115/

Ranged along the bottom of the picture are the various chapters: chapter 4 is about having the discussions about ‘do not resuscitate’. Below the video are some interesting comments from doctors and family members about those conveersations.

HSC Bill: comments and DH website

Monday, January 24th, 2011


The Department of Health has a website on the Health and Social Care Bill:

http://healthandcare.dh.gov.uk/

And it contains currently some statements from interested organisations about the proposed reforms, mostly brief excerpts from longer statements and links to them. Nothing reallly on palliative care, but there’s an Age UK comment.

BASW, College of Social Work 2

Monday, January 24th, 2011


And a Community Care article with links to current activity:

http://www.communitycare.co.uk/blogs/mental-health/2011/01/the-social-work-civil-war-begi.html

BASW and the College of Social Work

Monday, January 24th, 2011


Jackie Rafferty also gives links to press articles on the BASW/College of Social Work spat:

Community Care:
http://www.communitycare.co.uk/Articles/2011/01/21/116155/basw-confirms-launch-of-own-college-of-social-work.htm

The Guardian:
http://www.guardian.co.uk/society/2011/jan/21/social-workers-professional-organisation

Cremation carbon in the atmosphere

Thursday, January 6th, 2011


Dr Nigel Sykes writes:
I noticed the remarkable statement that each cremation releases 260kg of carbon into the atmosphere. This is clearly not due to carbon release from the corpse as carbon makes up only 18% of an average body mass of around 70kg, i.e. about 12kg or so. I assume the figure you give is a testimony to how much fuel it takes to get a corpse to burn?