St Christophers
Malcolm Payne

Social care and social work are important in end-of-life care.

Malcolm Payne's blog focuses on developments in social care and social work that affect palliative and end-of-life care. It is part of the information work of St Christopher's Hospice, London.

Misys Charitable Foundation

Archive for the ‘poverty’ Category

Topping up: in the end the poor will be excluded

Wednesday, November 12th, 2008


An interesting House of Lords debate on top-ups, following Mike Richards’s report on allowing people to buy drugs and still get NHS treatment (mainly for cancer). Their lordships went on to talk about top-ups in principle; the issue being whether this leads in the short- or long-term to inequalities between patients; perhaps one should say more inequalities, since there already are a lot, but I suppose in this case the government is creating the potential for more.

This connects up with the fairly constant demand in continuing care cases that I deal with for families to be able to top-up the price the NHS will pay for care homes (either with or without nursing) so that they can choose the ones they want to go to. Currently, the pcts in our area mainly have a limited list (of cheapo care homes) and you have to be able to show that these cannot meet your need before they will (unwillingly generally speaking) pay more. This proceduralises the process for getting your needs met, because you have to prove that the cheap list cannot cope with your needs, rather than it being an active process of looking for the right place.

However, this excludes choice; the government rhetoric is of choice, and people cannot understand why they cannot have it. Choice is severely limited unless you can pay for everything, and because you are not allowed to top-up the NHS bedget, there will inevitably be pressure to allow top-ups. The present system is unsustainable at least partly because the social services require you to contribute to costs, while the NHS refuse to let you; a total inconsistentcy in policy. But it is true that eventually this will mean that only poor people will end up in the cheapo care homes (which are not all awful, but it’s tougher for the managements because of high costs in London) and the middle classes with a bit of money will migrate, while they are at the moment forced by continuing care policies of no top-ups also to occupy the cheap care homes. So the argument for top-ups does aim to advantage the middle classes, leaving the poor to put up with worse.

This means that whatever system eventually allows people to top up will have to be more generous about the needs of the poor, because otherwise their care will be less pleasant and creative than that of the middle classes who can afford to pay a bit. Does this matter, if the basic needs are met? The palliative care and social work view is that it would matter, because people at the end of life should have a stimulating environment, with worthwhile and fulfilling things to do. Pcts, by their nature, only look at the minimal healthcare needs rather than these wider issues of social participation. The poor also have social needs.

You can see the debate in Hansard at: http://www.publications.parliament.uk/pa/ld200708/ldhansrd/text/81104-0005.htm#08110439000010

Finding out about fuel poverty in your area

Tuesday, November 4th, 2008


A Parliamentary answer by Joan Ruddock alerted me to the website run by the Centre for Sustainable Energy which charts fuel poverty in your area; it might help you look at needs in the patch you cover; the current data covers 2003. The Parliamentary answer says (in part) this:

The Government’s Sixth Annual Progress Report on Fuel Poverty was published on 2 October 2008. It shows that, in 2006, there were approximately 3.5 million households in fuel poverty across the UK, an increase of 1 million households since 2005. Around 2.75 million of these are vulnerable households (containing children, the elderly or a person who is disabled or suffering from a long-term illness). (Hansard, House of Commons, 30 Oct 2008 : Column 1217W.

It’s likely to get worse, isn’t it – presumably palliative care patients will be in some vulnerable households. Important to think about.

The website: http://www.fuelpovertyindicator.org.uk/

US health costs

Monday, November 3rd, 2008


An interesting study of what drives health costs in the US mainly does not comment on detailed comparisons with other countries, except to say that most other countries have near universal coverage, while the US misses out around 15% of their population, and that most other countries have lower costs, mainly because the ‘fragmented payers’ in the US cannot check whether technological innovations are effective. Makes you feel all warm about NICE, doesn’t it?

Ginsburg, P. B. (2008) High and rising health care costs: Demystifying U.S. health care spending. Princeton NJ: Robert Wood Johnson Foundation (Sybthesis Project Report 16). http://www.rwjf.org/files/research/101508.policysynthesis.costdrivers.rpt.pdf

Place and equality

Thursday, October 30th, 2008


An interesting article by Patrick Diamond of the newish Equality and Human Rights Commission, the new generic body that has taken on overseeing action on race, gender, disability and other equalities (in a pamphlet about equality, diversity and localism). The argument is that equality is promoted by developing a strong sense of belonging in a local community. Other articles about the role of local authorities in promoting equality, for example in child care services and other services that aim at social wellbeing, argue that equality stems from commitment to a diverse local environment.

Solace: the Society of Local Authority Chief Executives http://www.solace.org.uk/index.htm

Equality and Human Rights Commission: http://www.equalityhumanrights.com/en/Pages/default.aspx)

Diamond, P. (2008) How ‘place’ shapes equality and equality shapes ‘place’. in de Groot, L and Mason, A. (eds) How Equality Shapes Place: Divesity and Localism. London: Solace Foundation.

Because I’ve been away on holiday and this blog is not published outside the Hospice yet, I have not been posting daily, but now I’m posting the backlog.

Pics of the St Christopher’s building works, in solidarity with colleagues who are working in difficult conditions, so that things can be better in the future.

Crossed off the map (another area of the hospice inaccessible):

Crosssed off the map

Poverty among people at the end of life 2

Wednesday, August 20th, 2008


Another study on poverty collects up a range of previous studies and shows that cancer patients and their families struggle with the benefits system, and have few sources of advice. Again, part of the picture is that health and social care professionals do not see it as their role to help people with this, but people’s financial stability is basic to a satisfying life and being able to benefit from healthcare.

Wilson, K. and Amir, Z. (2008) Cancer and disability benefits: a synthesis of qualitative findings on advice and support. Psycho-Oncology. 17: 421-9.

Pics of the rebuilding at St Christopher’s, now under way, in solidarity with all colleagues working through a difficult time, to make things better in the future:

Dig this?dug up

Poverty among people at the end of life

Wednesday, August 20th, 2008


An interesting paper in Palliative Medicine, reanalysing the British Household Survey to find that while 90% of people in the last year of life saw a primary care professional and a third spent time in hospital, more a third reported financial strain in their lives. The proportion receiving attendance allowance (payable to people over 65) was low compared with wider studies. The suggestion is that primary care professionals could have pointed more people at benefits they were entitled to. I see this as an example of the failure of healthcare services to integrate their social care responsibilities properly into their roles. Social benefits and social care are not just someone else’s responsibility.

Hanratty, B., Jacoby, A. and Whitehead, M. (2008) Socioeconomic differences in service use, payment and receipt of illness-related benefits in the last year of life: findings from the British Household Panel Survey. Palliative Medicine. 22: 248-55.

Pics of the rebuilding at St Christopher’s, now under way, in solidarity with all colleagues working through a difficult time, to make things better in the future:
The Chapel is moving (God moves in mysterious…)chapel closes

Healthcare innovation to be led by doctors, according to doctors

Monday, July 14th, 2008


A supplement in Guardian Public (July 2008) makes a distinction between service innovation (which is ‘sluggish’) and clinical and technical innovation which is not. It seems this is from a seminar of managers and people from business schools telling themselves that these professionals just don’t get what they’re trying to do.

In another article, the BMA is said to believe that the government’s central control is the problem: ‘Let the professions lead, hand in hand with the public, and you’ll see the progress our patients want.’ (Clarke-Jone, J. (2009) At the sharp end of change. Guardian Public July 2008: Supplement: How to embed innovation in healthcare. 6-7. Probably the BMA means the medical profession, possibly with a curtsey to nurses; I wonder how they’d feel about some social aims to remove health inequalities in there.

The problem is that good management is needed, but it needs to be done well, and what professionals fear is that constant change is destabilising and prevents them from getting on with the day to day job. Any organisation has this discontinuity between the managers who need to keep the show on the road and the managers who need to look to the long-term. Even doctors are managers, most of them are much more conscientious managers that people who are managers that only manage are, because they have to do a meticulous job and carry the can if they don’t. But doing a meticulous job for the people who are here now requires a different mind set than people who are pushing for the next concept. They ought to have a different mind set, we should accept it and build a management system that respects both.

Are older people forgetful?

Wednesday, July 9th, 2008


The production organiser for the musical I’m appearing in writes to urge us to learn our lines, even though it’s difficult for us older people; she and I are the same age, over 60. I think saying things like this encourages discrimination against older people. As far as I know, all the evidence is that it’s a ‘use it or lose it’ scenario, so actually learning our lines is good for our overall ability to remember. Looking up the valuable http://www.helpguide.org/ site (it seems to be something to do with American Rotary, who knows why, or perhaps they just fund it) which gives advice on all sorts of personal mental health things, I found some useful tips of keeping your memory capacity green: http://www.helpguide.org/life/improving_memory.htm . Apparently a good move is to take lots of aerobic exercise, on the ground that this improves oxygen in the brain, and to exercise your brain by doing new things or old things in new ways. They suggest showering and dressing with you eyes shut, just to make your brain work harder.