St Christophers
Malcolm Payne

Social care and social work are important in end-of-life care.

Malcolm Payne's blog focuses on developments in social care and social work that affect palliative and end-of-life care. It is part of the information work of St Christopher's Hospice, London.

Misys Charitable Foundation

Archive for September, 2009

Consultation on roles of adult social workers

Monday, September 14th, 2009


In all the frenetic activity arising from the publication of the interim report from the Task Group on Social Work, Skills for Care, the employers’ training body, ADASS and DH have published a consultation paper on the roles and tasks of social workers in adult care, which perhaps social workers in palliative care should be responding to, because as usual it’s main line is a lot of government-speak, although it is positive about the role of social work.

It seems that social work is the ‘profession of choice’ in dealing with best interests issues under the Mental Capacity Act. I know a lot of doctors and nurses who’ll be upset to see that written down under the banner of the Department of Health.

You have to reply by 9th October.

See the paper and the questionnaires at:

http://www.skillsforcare.org.uk/socialwork/rolesandtasksofsocialworkers/sw_roles_and_tasks_of_social_workers.aspx

Young carers in families of dying people

Monday, September 14th, 2009


How many carers of palliative care patients are under 18? How many under 18s are helping with care, even if they are not the main carer? You don’t know?

We ought to be making special efforts to help those young carers in their families. St C’s groups for young carers are much appreciated by the youngsters and other family members too.

I am reminded of this by the government’s ‘think family’ toolkit, a series of guidance and advice notes about thinking about engaging with the whole family if you;re working with one individual. Its young carers section points to the Children’s Society young carers project and young carers net at the Princess Royal Trust fro Carera.

Think Family:

http://publications.teachernet.gov.uk/default.aspx?PageFunction=productdetails&PageMode=publications&ProductId=DCSF-00685-2009&

Young carers project:
http://www.youngcarer.com/showPage.php?file=index.htm

Young carers net:
http://www.youngcarers.net/

There’s a resources guide on working with young carers from the Children’s Society and the Princess Royal Trust:
http://www.youngcarer.com/pdfs/MAKING%20IT%20WORK%20Vol%202.pdf

The hospice environment for social work

Monday, September 14th, 2009


I see from Help the Hospices’s ‘Executive News Online’ http://www.helpthehospices.org.uk/enewsletter/executive_news_online_11_september_2009.htm that there is going to be a tranche of money for improving the care environment for patients, families and carers in hospices.

ENO says: Hospices will be invited to submit proposals for projects that will improve the care environment for patients, their families and carers. The funding will be available for projects starting in April 2010 with a completion deadline of 31 March 2011.

While you’re all gearing up for that (there were previous tranches, but little chance of more in view of the pressures of banking incompetence on the economy) perhaps a bit of thinking about the provision for decent social work facilities might do more than flit across the mind of hospice managers. Social work readers might perhaps remind their health service obsessed bosses that since they employ social workers they should be complying with the Code of Practice for Social Care Employers, which includes:

Effectively managing and supervising staff to support effective practice and good conduct and supporting staff to address deficiencies in their performance

Having systems in place to enable social care workers to report inadequate resources or operational difficulties which might impede the delivery of safe care and working with them and relevant authorities to address those issues.

This might look as though it majors on weeding out bad social workers, but look again at’ ‘…effectively managing…to support effective practice…’.

I recently visited a hospital that had no private place near wards where families or carers of patients could be interviewed and discuss their private affairs with their social workers. I’m sure I would be told that they had a broom cupboard somethere on the fifth floor, but I am constantly amazed at the lack of privacy that people in hospitals put up with.

Is it the same in hospices? How carefully have hospices looked to see if their facilities for social work and the bereavement service are adequate?

More pics of th new St C’s, which indeed did benefit from one of the past tranches of DH money for end of life care. Here is another part of the Anniversary project facilities for patients families and carers: this part of the information resources allows patients, carers and family members to go on the internet, helped by volunteers and staff, to find out and use information that will be useful to them. The new version of leaflet racks (although we’ve got those too):

Computer info

Vetting and barring scheme

Friday, September 11th, 2009


John Humphries giving the minister grief this morning in ‘Today’ over the new vetting and barring scheme – having to get people vetted who just agree to take local kids in the car on behalf of a football club twice a month.

Of course, if John and his friends in the press are going to say ’something must be done’ every time there’s some child care scandal (although not bothering so much when some older person gets abused), this is the result, because as Bob Reitemeyer (I hope that’s right) from the Children’s Society said, the only way we know to do this is to improve overall communication, which means drawing more people into the net.

And it doesn’t answer the point that most children are abused by friend and family, not someone driving their minibus in a fairly public situation.

It’s exactly the same with older people: in the St Christopher’s audits of adult safeguarding referrals, much of it was neglect and pressure as a carer by family members. The answer to that is good support for family carers.

From my series of pics of the new St C’s: another thing you can make an appointment for from the new anniversary centre is the gym, set up to look like a high street gym; it also provides for physio. And it’s because the fitter you are, the better your quality of life, even if you are suffering from an advanced disease.Gym

Adult safeguarding report on serious cases

Friday, September 4th, 2009


Adult safeguarding is something that many social workers in palliative care take on for their hospices or teams. A new report summarises the lessons from serious case reviews like the reviews that are done (with a rather greater public profile) on children whose safeguarding goes wrong. It does not look at the reviews, but at the process of getting the reviews done, although it does say something about some of the reviews done in the case of deaths or sexual abuse of vulnerable adults.

Amazingly, there is no national system for checking up on these reviews, but there has been nearly a hundred, with the maximum number in any area of four. Often, cheapo cheapo, they do not have independent chairs. There was considerable variation in how the local safeguarding boards decided to have a review. It looks from the feedback as though local pcts and hospitals were particularly uncooperative, although most agencies were prepared to be involved; another sign that people in the health service would still rather not know about this sort of nasty.

The study of prevalence of adult abuse among older people a few years ago showed that on average a hospice might get 3-4% of its older patients being abused. I think most hospices don’t get anything like these numbers turning up, which suggests that we are missing a lot, and many older people and perhaps other patients and family members are being distressed by abuse that we are not picking up.

Worth reading:

Jill Manthorpe and Stephen Martineau (2009) Serious Case Reviews in Adult Safeguarding. London: Social Care Workforce Research Unit, King’s College London.

http://www.kcl.ac.uk/content/1/c6/05/16/29/SeriousCaseReviews.pdf

New social work recruitment campaign

Thursday, September 3rd, 2009


The website of the new campaign to recruit social workers in the UK:

http://www.helpgivethemavoice.com/

The government is having another go at this: I rather enjoyed the picture strip style of the last campaign. I wish they would think about saying more about social work than the basic jobs that the government is interested in. When you’ve done those for a while, it’s a good career incentive to know you can earn reasonable pay doing interesting and well-evaluated work in palliative care scoial work.

Still, it’s all positive stuff about social work.

A futher pic of the new St Christopher’s. Aside from appointments with your doctor, nurse, social worker etc, you can also book to have a bath. We found people really wanted this, not because they couldn’t bath at home sometimes, but because they felt safer when a St C’s nurse was around to respond in an emergency:Bath suite 2

American palliative care social work blog

Thursday, September 3rd, 2009


You might enjoy an American hospice social worker’s blog:

http://confessionsofayoungsw.blogspot.com/search?q=

Al-Megrahi and palliative care social work

Wednesday, September 2nd, 2009


I mainly don’t do everyday politics in this blog, but I can’t avoid thinking about the al-Megrahi situation. This is the man who committed the Lockerbie bombing, killing almost 300 people in a terrorist act in the 1980s.

He has been in prison in Scotland for some time, and was released a little while ago to return home to die with prostate cancer, on grounds of compassion. Many people, and apparently a majority of the Americans whose relatives were killed in the bombing, feel that he should have died in prison.

The palliative care social work answer to this view is, never mind compassion, think about helping the whole family respond to the death of an important person in their family.

I don’t agree that sending a political message that terrorism is not acceptable is relevant; this message is clear. responding to the family needs of a dying man is the crucial point. Similarly, chaining up people dying in prison was felt to be reprehensible in a case a few years ago, when a man who was clearly beyond escaping was chained to his bed in a hospice. Dealing with the death of a prisoner, no matter what they have done, should respect our common humanity.