St Christophers
Malcolm Payne

Social care and social work are important in end-of-life care.

Malcolm Payne's blog focuses on developments in social care and social work that affect palliative and end-of-life care. It is part of the information work of St Christopher's Hospice, London.

Misys Charitable Foundation

Archive for November, 2008

Blog live on the internet – progress

Tuesday, November 4th, 2008


On this day, when Social Care/Palliative Care is live for the first time on the internet, I thought I would provide signs of progress. No I don’t mean the world is about to get better, but the rebuilding works at St Christopher’s have begun to produce results: there are new bits of the building.

A few weeks back, we saw in a post the closing of the old chapel. Then we saw the as yet unopened new Pilgrim Room. Now it is open and being well-used by patients and families: here is a pic of its newly commissioned window:Pilgrim glass 2

Finding out about fuel poverty in your area

Tuesday, November 4th, 2008


A Parliamentary answer by Joan Ruddock alerted me to the website run by the Centre for Sustainable Energy which charts fuel poverty in your area; it might help you look at needs in the patch you cover; the current data covers 2003. The Parliamentary answer says (in part) this:

The Government’s Sixth Annual Progress Report on Fuel Poverty was published on 2 October 2008. It shows that, in 2006, there were approximately 3.5 million households in fuel poverty across the UK, an increase of 1 million households since 2005. Around 2.75 million of these are vulnerable households (containing children, the elderly or a person who is disabled or suffering from a long-term illness). (Hansard, House of Commons, 30 Oct 2008 : Column 1217W.

It’s likely to get worse, isn’t it – presumably palliative care patients will be in some vulnerable households. Important to think about.

The website: http://www.fuelpovertyindicator.org.uk/

Keeping in touch with dead family members

Tuesday, November 4th, 2008


People may have missed Broadcasting House on Sunday (Radio 4 from 9-10 am); it had an interesting item (possibly because of All Saints Day) on bereavement, and in particular the experiences of some famous and non-famous people about their continuing links with the deceased person who was close to them. George Melly’s wife, Diana, for example, talked about how his colourful personality had filled the house and her life, and now, although she missed him, his death had freed her to be more ‘herself’. Other people mentioned talking to their dead relative.

You would still be able to listen to this on the BBC iPlayer.

Mental Health Act – key documents

Monday, November 3rd, 2008


Useful Department of Health website recvently updated with new key documents on the Mental Health Act; remember there are lots of developments stemming from the 2007 amendments to the 1983 Act, which is still mostly in force.

http://www.dh.gov.uk/en/Healthcare/NationalServiceFrameworks/Mentalhealth/DH_089882

Political party websites – beyond sentimentality

Monday, November 3rd, 2008


The downloads from this post are my comments on palliative care, and to a lesser extent, policies on social care and older people relevant to palliative care from the party political websites of the main parties in the UK.

I have looked at the three main national parties, Conservatives, Labour and Libdems, and parties in power or major contention in the countries of the UK (the DUP and Sinn Féin in Northern Ireland, Plaid Cymru in Wales and the ScotNats in Scotland. Eventually, I might get around to lesser parties.

My overall assessment is that, on palliative care, the Conservatives win out; their coverage is much more extensive, I think because they have a relatively open website with lots of information about people (including their palliative care affiliations) and speeches from their members, all easily searchable. My view of this is that I wish the political parties were all open and non-monlithic like this, because it allows people with a minority interest like palliative care to find points about it. The Libdems have less but are OK. Labour has an execrable website, hard to read, no search facility and a focus on their priorities rather than any specialist groups that might want to see what their interests are.

The smaller parties all have some content on the issues relevant to this blog. What this shows is the low profile of palliative care generally; there is rarely a specific policy, and where there is this is often about the voluntary sector providing more palliative care for the relevant government; i.e. cheaply.

The other comment that I would make is how motherhood and apple crumble it is (my mother preferred crumble, it’s easier than pie). I do think it’s about time that palliative care moved beyond the sentimental approach to promoting its cause.

See what you think and let me know.

Conservative Party, Democratic Unionist Party, Labour Party, Labour Party, Plaid Cymru, Scottish Nationalist Party, Sinn Fein

Children’s cancer measures

Monday, November 3rd, 2008


The Department of Health is having a consultation about the measaurement of children’s cancer services that will eventually becomre part of the self-assessment for serviecs checking out how they’re doing.

http://www.dh.gov.uk/en/Publicationsandstatistics/Lettersandcirculars/Dearcolleagueletters/DH_089911

US health costs

Monday, November 3rd, 2008


An interesting study of what drives health costs in the US mainly does not comment on detailed comparisons with other countries, except to say that most other countries have near universal coverage, while the US misses out around 15% of their population, and that most other countries have lower costs, mainly because the ‘fragmented payers’ in the US cannot check whether technological innovations are effective. Makes you feel all warm about NICE, doesn’t it?

Ginsburg, P. B. (2008) High and rising health care costs: Demystifying U.S. health care spending. Princeton NJ: Robert Wood Johnson Foundation (Sybthesis Project Report 16). http://www.rwjf.org/files/research/101508.policysynthesis.costdrivers.rpt.pdf

New cremation procedures

Monday, November 3rd, 2008


The Ministry of Justice has published new forms and guidance on cremation to avoid another ‘Harold Shipman-type’ situation.

Here’s the website: http://www.justice.gov.uk/guidance/cremation.htm

Depriving people of liberty

Monday, November 3rd, 2008


The Department of Health has published draft guidance on a variety of forms and record-keeping when hospitals, hospices and care homes deprive people of their liberty under the Mental Capacity Act 2005. This is for training purposes for the supervisory authorities (PCTs and local authorities). As a draft this hasn’t happened yet, but advance training and checking up on what they’re doing seems like a good idea; it might happen rarely, but when it does, it’ll be a big issue.

Here’s the website: http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_089772

Pics of the St Christopher’s building works, in solidarity with colleagues who are working in difficult conditions, so that things can be better in the future.

Caged dining (the dining room is now cut off from normal life):

Caged dining