Archive for September, 2008
Thursday, September 11th, 2008
As from today, I’m on to my second tranche of rebuilding photos. Just to remind you, I am posting photos of the rebuilding works at St Christopher’s Hospice, in solidarity with colleagues who are working in difficult conditions, so that things can be better in the future. This first photo of the new lot is of the new chapel; a while ago I posted a photo of the closure notice of the old chapel, and here is the new one finished, although not yet open. But this is the glimmer of a new era coming.
New Chapel
Posted in about this blog | No Comments »
Wednesday, September 10th, 2008
I was given the Involve public information pack on involvement in NHS, public health and social care research. This is a file of booklets explaining how to get involved with NHS and social care research, although it’s not really all that explicit about social care. The booklets cover how you might get involved if you want to, how you can find out more and a ‘jargon buster’, which many professionals would find useful, never mind members of the public.
I have my doubts. I recognise the goodwill behind the current obsession with the ‘public’ being involved with everything, but frankly most members of the public have much better things to do with their lives than sitting on committees managing research projects; why would anyone want to do this? Public involvement is a busybodies charter for lobby groups consisting of full-time professional service users with nothing better to do with their lives. I’ve sat through meetings at which involvers have told you their story to be replaced at the next meeting with another involver who wants to tell you their (marginally different) story, both of whom have to be listened to courteously, meaning you can’t get on with what you’re supposed to get on with.
I think there are more important things, directly affecting their lives and care, for service users to be involved in than research projects. However, I can see that where there are involved users and a chance of having an in to research comes along, this might be useful help for the people who take part. To actively promote involvement in research management to the whole world is a waste of time and money.
Buckland, S. et al (2007) Public Involvement Pack (PIP): How to get involved in NHS, public health and social care research. Eastleigh: Involve.
Posted in end of life care, palliative | No Comments »
Tuesday, September 9th, 2008
An extensive literature review and analysis from SCIE, the social care equivalent of NICE, looked at carer participation in England, Northern Ireland and Wales (they don’t do Scotland, there’s a separate body). It contains a good summary of the literature and helpful abstracts. Overall, they find that making services user-friendly (user is social care jargon for what people in healthcare would call the ‘patient’) can make it difficult to get carers involved, because they need more time and visits than social care professionals will usually give to think through what they need. Training needed to be on carer needs and issues, not on how to complete the required assessment, which tends to turn into a bureaucratic exercise. Interestingly, some PCTs and equivalents are felt not to perceive carer participation as ‘core business’.
Roulstone, A., Hudson, V., Kearney, J. and Martin, A. (2006) Working Together: Carer Participation in England, Wales and Northern Ireland. London: Social Care Institute for Excellence. http://www.scie.org.uk/publications/positionpapers/pp05.asp
Posted in care, social work | No Comments »
Tuesday, September 9th, 2008
Looking for Telegraph stories on palliative care, the 5th August yields a report about a GP trainee who behaved inappropriately with a female patient, but was cleared of various allegations. he has now decided to move work into palliative care and work in a hospice. Yes we’d really like to employ someone like that…
Trainee GP’s ‘hell’ over false rape allegation
Posted in news | No Comments »
Monday, September 8th, 2008
Mostly so far I have just included pictures in this blog that are relevant to the post. In April, for a while, though, I offered a series of photos of memorials in St Nick’s churchyard, Sutton, and in May of St Christopher’s Hospice taken before this year. This is because building works for the new anniversary project started in June. Since then, I have been offering an occasional picture of the rebuilding works. When it’s all finished, I plan to show you some pictures of the renewed St C’s.
In the meantime, you’re welcome to let me know your favourite building works pic. click on comment to tell me.
Posted in about this blog | No Comments »
Monday, September 8th, 2008
The Department of Health has published a rather basic public information document about LINks (Local INvolvement Networks) – the small k is intentional, an abbreviation of network, and is bound to cause endless trouble. It’s a network because nothing can be a committee nowadays, it’s just so uncool, but this is the second round of replacements of Community Health Councils as ways in which local people can express views about their NHS and (this is the innovation) also their local social services department. I was incvolved in a failed experiment for a community social services council in the early 1980s, plus ca change… LINks can express views about serviecs commissioned in their area, so this inclues the local hospice.
Department of Health (2008) Listening and responding to communities: A brief guide to Local Involvement Networks. London DH (http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_087758)
Pics of the rebuilding at St Christopher’s, now under way, in solidarity with all colleagues working through a difficult time, to make things better in the future:
In the cage
Posted in care, end of life care, palliative, social work, voluntary sector | No Comments »
Thursday, September 4th, 2008
A study on transferring patients from a hospice to care homes is published in a social work journal that some readers may not see. It is interesting not only in pointing up how distressed people are by the mere suggestion, partly because it means another move or possibly cost, If continuing care is not available people have to pay or have a local authority means test. But continuing care often is available for palliative care patients, though people may not be aware of it. The other interesting set of comments queries how we have come to assume that palliative care is a short term intervention. Where has this come from? Is it another example of medicalisation – the only intervention that counts is the expensive medical and nursing care, not the emotional and personal care of the family? Although this study is convincing and fits with past studies on the very small proportion of patients who actually get to nursing homes, this is not universal, becasue at St Christopher’s we seem to get more people who can transfer; this might be a London phenomenon perhaps.
Reith, M. and Lucas, C. (2008) Questioning the evidence for service assumptions: audit of transfers from a hospice to nursing home care. Journal of Social Work. 8(3): 233-45.
Pics of the rebuilding at St Christopher’s, now under way, in solidarity with all colleagues working through a difficult time, to make things better in the future:
Walled up
Posted in care, social work | No Comments »
Wednesday, September 3rd, 2008
The news that various charities, including NACRO, the main organisation working for ex-offenders, are bidding to run prisons, raises the question why NHS services are not being put out to bidding, and if they were, whether voluntary sector hospices might bid to run their local NHS palliative care services. A lot of voluntary sector hospices and palliative care services have great expertise in developing and managing palliative care services. NACRO demonstrated that they could do the job by very effective management of high volume services for years; many hospices could show the same record. Some big hospitals are chauvinist about running their own community palliative care when a hospice could do it better, and the added value to the connectedness of patients’ services would often be great, and if the proposal shows it wasn’t, the PCT or hospital trust could say ‘no’. And there might also be something to be said for having external palliative care fed into hospitals. There might be disconnections, but there might also be a strengthening of the service because an external service would have focus. Increasingly, in business, the giant organisations of yesteryear, are giving way to small organisations simply becauase focus is more important than size and variousness. And people working in other medical specialties tell me that their lead doctors are as uninterested in good care for dying people as cancer doctors were a few years ago; a good external hospice service might ginger this up. Perhaps the problem with bidding for this kind of work comes from the fact that the NHS has had palliative care too cheap for for too long, because the NHS has paid nothing like the full ticket for the costs of voluntyary sector hospices, and sensible bids for NHS services would show up how much the NHS should pay for the services it is currently getting from the voluntary sector.
Pics of the rebuilding at St Christopher’s, now under way, in solidarity with all colleagues working through a difficult time, to make things better in the future:
The pilgrim’s progress (the Pilgrom Room for visitors is closing to become the new chapel)
Posted in end of life care, news, palliative, voluntary sector | No Comments »