St Christophers
Malcolm Payne

Social care and social work are important in end-of-life care.

Malcolm Payne's blog focuses on developments in social care and social work that affect palliative and end-of-life care. It is part of the information work of St Christopher's Hospice, London.

Misys Charitable Foundation

Archive for September, 2008

Impact of social science research

Tuesday, September 30th, 2008


An interesting report of a seminar, with European examples, into the extent to which and how social science research achieves impact in policy-making; there is useful guidance on research impact assessment. What comes across, though, is the limited view that government takes of research impact: the main iterest is in ‘what works?’, without thinking about conceptual research (what is it we’re doing in the first place? have we got our aims right?). I suspect that much research gets twisted to fit organisational needs, so that although you see it mentioned as a justification, does its use really reflect the complexities of the original research?

Morton, S., Nutley, S. and Jung, T. (2008)The impact of the social sciences on public policy and the impact of evidence-based policy on the social sciences. University of Edinburgh http://www.crfr.ac.uk/norface/Report%20on%20seminar%202.pdf

If you go to the relevant website, there is more information about these issues: http://www.crfr.ac.uk/norface/index.html

Pics of the St Christopher’s building works, in solidarity with colleagues who are working in difficult conditions, so that things can be better in the future. Footings (for a new part of the buidling):

Footings

Resource document on the End of Life Strategy 2008

Tuesday, September 30th, 2008


A resource docunment commenting on the DH End of Life Care Strategy. End of Life Strategy 2008

Blog copyright notice

Thursday, September 25th, 2008


©Copyright, St Christopher’s Hospice, 2008. All rights reserved.

If you want to reproduce parts of the blog, please contact us.

Better fees or grants for quality?

Wednesday, September 24th, 2008


Skips breedingWarrington Borough Council has produced a report about enhancing dignity in care in care homes, among other things by providing financial incentives in the fees paid for meeting dignity and quality of care criteria. Could this be a way forward in commissioining by PCTs for hospices? And what would be the consequences?

See the Warrington report on:

http://www.idea.gov.uk/idk/core/page.do?pageId=8865638&aspect=full

Pics of St Christopher’s rebuilding works in solidarity with colleagues who are working in difficult conditions, so that things can be better in the future. Skips breeding (where one big one was there before, now there are more small ones)

The new social care settlement

Wednesday, September 24th, 2008


Among the press reports of Gordon Brown’s speech to the Labour Party conference yesterday, are the signs that the government is close to the ‘new settlement’ on social care for older people (and presumably other long-term conditions, or are they not bothering with disabled people etc?). This will mean some kind of clarity about how much local authoriities and the public will pay for care homes and home care.

What consequences will this have for NHS continuing care? This is an interlocking system, which provides more generous funding than local authority community care, but you cannot make a contribution to improve your care by paying a bit more for a home or a package of care that you actually want, as opposed to the grim places some PCTs make their patients live in. This is exactly the opposite of the policy with community care, where the patient must make a contribution if the means test says they can afford it.

Another Gordon announcement is relevant here: cancer patients (is it only them because of the emotional but irrational priority given to cancer as a dread disease?) are going to be allowed to top up their drugs, but still get NHS care if NICE will not agree that some new drug is cost effective. This is exactly the same rule that prevents family top-ups to care home fees, so if it’s going to be changed because of the durgs, it cannot be long before patients and families are allowed to top-up the continuing care payment for their care home. Although this may be a false assumption in view of the fact that continuing and community care policies are so riven with inconsistencies.

Resource document: what is social work/social care?

Tuesday, September 23rd, 2008


Here is a resource doucment on what is social work and social care: What is social care and social work?

Resource documents in this blog

Tuesday, September 23rd, 2008


Resource doucments are documents of several pages prepared to provide more comprehensive information and more considered views than the daily posts. They might be useful for people, including students, who want a fairly comprehensive introduction to a topic.

I have prepared a number over the time that I have been working up to startingthis blog, and I am uploading a series of posts this week containing available documents.

Resource document: Dignity in Care policy

Tuesday, September 23rd, 2008


Here is a resource document about government dignity in care policy: Dignity in Care

User responses to bereavement palliative care

Tuesday, September 23rd, 2008


A study published in a social work journal, Practice, this week might well not be seen by palliative healthcare professionals, and is a good example of the small practitioner-type research studies that are coming out about social work. It describes a small study of middle-aged people bereaved within the past two years in a northern Ireland health and social care trust (in NI health and social care are always provided by joint trusts). Service users were socially isolated, they were not aware of whether full bereavement assessments had been done, and sometimes they hadn’t been, and this led them to fear that their ‘poor mental health status’ was undetected. Bereavement support was offered, but often not accepted, being offered at the wrong time, offering no choice of provider and participants not recognising their needs. Most people were helped by informal social networks or, occasionally, GPs. Where used, social workers were unanimously felt to provide good bereavement help, but were not always available.

What this, along with many other studies, tells us is that having a social worker is good for your service, provided that others know about it and what social workers can offer. Also, a bereavement service needs to be offered regularly, perhaps especially in the second year of bereavement when other help has dried up or people have only just realkised their needs. Enthusiasts for bereavement risk or need assessments will gain some encouragement from this study, since it shows that leaving it to people to refer themselves is at best haphazard. However, there is not a lot of evidence that bereavement assessments enable services to be targeted, and they are often done without involving the potentially bereaved person; regularly offering a consistently available service so that people can pick it up when they realise they need it might bring better rewards than trying to focus (or does that mean ration?) services.

Agnew, A., Manktelow, R. and Donaghey, K. (2008) User perspective on palliative care services: ewxperience of middle-aged partners bereaved through cancer known to social work services in Northern Ireland. Practice 20(3): 163-80.

Pics of the rebuilding works at St Christopher’s Hospice, in solidarity with colleagues who are working in difficult conditions, so that things can be better in the future. Fish shelter: the reflecting pool containing koi carp has been partially boarded over to protect the carp from falling masonry or something.Fish shelter

Social care practice in context book

Tuesday, September 16th, 2008


Socpic cover

My new book, Social Care Practice in Context arrived from the publishers, Palgrave Macmillan today. In it I argue that social care practice is an important aspect of social work; so many people see organising services as somehow less social work than doing psychological therapy or community work. But the interpesonal skills involved in social care are just as significant. Practitioners have to be receptive to and value the needs of carers and service users, to be committed their personal development, and promote continuity and connectedness with service users’ existing social networks.

Link to the publishers: Palgrave Macmillan